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A Few Thoughts on the Bioethics of Space Cowboys
Blogger David Zahl considers pop culture and curing Down syndrome: "In addition to scientists and parents, priests and politicians, we would do well to consult our storytellers and poets, to examine not only our conscience but our imagination as well."
Why Down Syndrome Matters to You
What effect would a "cure" for Down syndrome have on our culture at large? What would it communicate about what and who we value? About what and who we are and want to be?
Reversing Down syndrome and the Golden Rule
"What mega-vitamins are you taking to overcome your deficiencies?" Lawyer, bioethicist, and blogger Mark Leach considers what the golden rule has to do with treating Down syndrome.
Down Syndrome Research, Hope for My Daughter
Mother and blogger Leticia Velasquez considers whether she would use gene therapy to mitigate the effects of Down syndrome for her daughter Christina: "How does her future look right now? Difficult, unless there is a medical breakthrough."
The Damaging Language of "Cure" and Down Syndrome
Once again we’re hearing news of a breakthrough in research on drug therapies to enhance the cognitive processing of people with Down syndrome. And once again, the discussions seem to fixate on the controversial notion of a “cure.” Why do we keep having the same conversation? A guest post by Columbia Univsersity Professor and author of Raising Henry, Rachel Adams.
Should We Try to Cure Down Syndrome?
In honor of Down Syndrome Awareness Month, a series of posts to address the problems and potentials of research to mitigate the effects of Down syndrome.
What I'm Reading and Tweeting (Sep 27, 2013)
Novels, memoirs, articles about faith, disability, and culture, and what I listen to on my drive home from dropping the kids off at school...
Will and Kate Help the World Imagine Possibilities for People with Down Syndrome
Why it matters that Will and Kate accepted a painting by a woman with Down syndrome for their son's nursery.
Three Reasons Why We Might Not Want to Cure Down Syndrome
Scientists think they have discovered a way to "silence" the chromosome that causes Down syndrome. We should be jumping for joy, right? I'm not so sure.
A Real Happily-Ever-After for Babies With Down Syndrome
Abortion, adoption, and yet again, ignorance over special needs.
What Trayvon Martin and Ethan Saylor Have in Common
Trayvon Martin and Ethan Saylor are both young men who died a tragic death. Why don't we know more about what happened with Saylor?
Do You Listen to Audiobooks? (If so, A Good and Perfect Gift is now available...)
A Good and Perfect Gift joins the trend by becoming an audiobook...
My Dreams for Penny, and Other Topics
Talking with George Estreich about family and education and what dreams we have for Penny and what dreams she has for herself.
Why I Write
On why I write, the authors who mean the most to me, and why stories matter.
Do Medical Textbooks Intentionally Offer Outdated Descriptions of Down Syndrome? and Other Questions for George Estreich
"Medicine is part of culture, and so culture, good and bad, is refracted through medicine." George Estreich on medical ethics, culture, and inclusion, among other things.
"A Doorway to a New Life": A Conversation with George Estreich About Down Syndrome, Writing, and the Stories that Make a Family
Is Down syndrome "bad" or "hard"? George Estreich reflects on writing, family, and life with his daughter Laura.
Quoting George Estreich on Family, Down Syndrome, and How we Tell Our Stories
My favorite passages from George Estreich's The Shape of the Eye, on family, Down syndrome, and how we tell our stories.
Part Two: The Unfinished Child, a Story of Down Syndrome, Love, and Choice (and a Book Giveaway)
Part two of Theresa Shea's interview about her new novel, The Unfinished Child. She talks about the parallels between parents of children with Down syndrome and typically-developing kids, the relationship between choice and selfishness, and why fictional accounts of prenatal testing experiences matter.
The Unfinished Child, a Story of Down Syndrome, Love, and Choice (and a Book Giveaway)
Novelist Theresa Shea discusses her book The Unfinished Child, a story about two families struggling to imagine life with a child with Down syndrome (plus a chance to read a free copy...)

Top Story May 1, 2024

Was Paul a Slave?
Was Paul a Slave?
The surprising argument that Saul of Tarsus was born into bondage.

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